Northern Ireland Rare Disease Partnership

Visit 

We are a voluntary not for profit organisation, established in 2011, bringing to-gether those living with a rare disease and organisations representing them: clini-cians and other health professionals; researchers and producers of specialist med-icines and equipment; health policy makers and academics. We aim to build networks of information and support for those living and working with rare disease in Northern Ireland.

Tell us what you think of this story. Or share your own

Please check your e-mail for a link to activate your account.

We use cookies so that we can remember you and understand how you use our site. By browsing our website, you agree to that use, according to our Privacy Policy